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Parent's Voice on Autism

Christy Reinhardt lives in Dutchess County, New York, with her husband and two sons. Since her son Crew was diagnosed with autism as a toddler, Reinhardt has been learning all there is to know about life on the autistic spectrum. Along the way, she created Crew's Voice, an organization to help other parents raise children with special needs.

Some Background

Fri Aug 07 2009

The first thing you should know is that I am the mother of two boys, ages 9 and 10. I am also divorced and remarried. I have my own business and my 9-year-old, Crew, has autism.

Crew was appropriately diagnosed as autistic as a toddler. Along the way, he was deemed as having everything from pervasive developmental disorder (PDD) and other disorders on the autistic spectrum to being deaf. I was devastated when the 800th (or so it seemed) doctor sat me down and told me Crew would not function in society and would require massive amounts of therapy because of his "severe autism."

When my son was 2 years old, a doctor told me that Crew would never speak or hold any kind of job. You can imagine just how unbearable it is to hear such news, and then look at your child's face and cry as he stares blankly at you. I felt like I went to a funeral that day. But I didn't know who died— me or the idea of having a normal child.

I went home and sat on my couch. When the rest of my family was fast asleep, including my then 3-year-old son, the anger and sadness truly emerged. I wondered: What am I going to do? What will it all cost? How will my friends and family be affected? All these thoughts raced around my head. I soon discovered the answer is simple: Just be the best mom you can be. As Crew would lay in my arms fast asleep throughout his infancy, I would look at him and say, I love you; everyone is wrong.

Everyone was wrong. After years of therapies, treatments and different schools and a lot of work by many people, Crew is where he is now. He is a delightful, sweet 9-year-old boy who says "Block Buster" 500 hundreds times a day. Crew continues to not fully look people in the eye, and he still hugs everyone he shouldn't. Writing about all this makes all the emotions come back like a hurricane. But when I look at Crew, I remember what it took to get him where he is today. He struggles with things, makes his point well known and acts different than typical kids. That's my wonderful Crew.

I am uncertain about Crew's future and I am always willing to take people's advice or hear their stories, hoping one day I will find Crew's voice. Of this, however, I am certain: A mother understands what her child cannot say.

Comments (3)

Craig and Denise Zottola on August 11, 2009

We are Crew's grandparents...our hearts are full of pride and joy with every accomplishment Crew and his family achieve. There are many.

Katie Thompson on August 11, 2009

You are a truly wonderful person, friend and a mother. I am blessed to have you in my life. Love you.

Sandy on August 13, 2009

I have friends with children on the autistic spectrum. It's so insightful to have an idea now on what it's like to raise autistic children.